Please take some time to read these incredible stories. You will have the chance to learn about some of the bravest children around. These are the stories of children fighting for the life, children who fought until the end, and children who are showing what being a heart warrior really means.
These are their stories. They deserve to be heard.
Poppy is an 11-month-old battling Ebstein's Anomaly.
We found out that Poppy was going to have a moderate to severe case of Ebstein's Anomaly while I was pregnant. She was born in April 2023 and spent the first month of her life in the NICU and the next six and a half months at home before our world turned upside down. She got RSV on January 6th and has had many complications since then. She had a modified Starnes, BT shunt, right atrial reduction, and AP collaterals coiled on March 7th. She has a long road ahead of her and is still inpatient. Her first birthday is approaching, and even though she will still be in the hospital, it will still be a very special day. She has a big sister, Eden, who misses her so much, and we all can't wait to be home together again. The best way to summarize what this experience has been like as a hole is a poem by Emily Perl Kingsley called Welcome to Holland. I'd recommend any parent of a child with a disability read it. Talking to fellow parents in similar situations has helped so much, as have support groups and even therapy. Having a child in Poppy's situation isn't easy, but if you have the right tools and resources, it can lighten the load.
-Poppy's Mom, April 2024-
Copyright © 2024 Miles of Love - All Rights Reserved.
Powered by GoDaddy